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Family quality of life in Neurodegenerative Diseases and associated factors [Dataset]
dc.contributor.authorBadia Corbella, Marta 
dc.contributor.authorOrgaz Baz, María Begoña 
dc.contributor.authorGonzález Ortega, Eva 
dc.contributor.authorVicario Molina, Isabel 
dc.contributor.authorGómez Vela, María 
dc.contributor.authorNEUROQUALYFAM group
dc.coverage.spatialIberian Peninsula, lat=40°30′N; long=4°00′Wes_ES
dc.coverage.temporalstart=2019-10 and end=2020-07es_ES
dc.date.accessioned2021-07-19T08:12:26Z
dc.date.available2021-07-19T08:12:26Z
dc.date.issued2021
dc.identifier.citationNEUROQUALYFAM group (2021). Family quality of life in Neurodegenerative Diseases and associated factors [Dataset]. GREDOS. http://hdl.handle.net/10366/147031es_ES
dc.identifier.urihttp://hdl.handle.net/10366/147031
dc.description.abstract[EN]This database was developed in a study of 300 family members of patients with Neurodegenerative Diseases (NDs), living in the cross-border region of Spain-Portugal, mostly in rural areas (70% females, mean age: 62.4). The majority were primary caregivers. Data were collected from October 2019 to July 2020 through a survey administered via telephone. Concretely, the FQOLS–ND examined how the family perceived its quality of life at the global and domain-level, in terms of attainment and satisfaction. It also collected data on diverse sociodemographic, family, and social-health factors. The survey is available at: http://hdl.handle.net/10366/145788.es_ES
dc.description.tableofcontentsThe variables included are: (1) Family Quality of Life (FQOL) at the global and domain-level, in terms of attainment and satisfaction (2) Sociodemographic factors (e.g., gender, age, educational level, employment status, income, civil status, type of relationship with the patient, living condition) (3) Family factors (e.g., communication skills, basic and instrumental activities of daily life) (4) Social Health factors (e.g., use of services, perceived barriers to services)es_ES
dc.language.isospaes_ES
dc.publisherUniversidad de Salamancaes_ES
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 Internacional
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.subjectNeurodegenerative diseaseses_ES
dc.subjectFamily quality of lifees_ES
dc.subjectFQOLS-NDes_ES
dc.subjectServiceses_ES
dc.subject.meshQuality of Life*
dc.subject.meshNeurodegenerative Diseases*
dc.titleFamily quality of life in Neurodegenerative Diseases and associated factors [Dataset]es_ES
dc.typeinfo:eu-repo/semantics/datasetes_ES
dc.subject.unesco3207.11 Neuropatologíaes_ES
dc.subject.unesco6310.09 Calidad de Vidaes_ES
dc.identifier.doi10.71636/5jej-r578
dc.relation.projectID0541_NEURO_QUALYFAM_6_Ees_ES
dc.rights.accessRightsinfo:eu-repo/semantics/openAccesses_ES
dc.type.hasVersioninfo:eu-repo/semantics/updatedVersiones_ES
dc.subject.decsenfermedades neurodegenerativas*
dc.subject.decscalidad de vida*
dc.publication.year2021


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