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Título
Factors affecting timely recognition and diagnosis of dementia across Europe: from awareness to stigma
Autor(es)
Palabras clave
Dementia
Early diagnosis
Focus group
Stigma
Health care services
Fecha de publicación
2005
Resumen
[EN] Background Timely recognition and diagnosis of dementia is the pre-condition for improving dementia care, but diagnosis
often occurs late in the disease process.
Objective To compare facilitators and obstacles to the timely recognition of dementia across eight European Union states,
in order to implement established policies for earlier diagnosis.
Methods A modified focus group technique, including a pre and posterior procedure.
Results Twenty-three participants from different disciplines, purposively sampled for professional expertise in dementia
research and innovative practice, attended two focus groups. Stigma in ageing and dementia, accompanied by a sense that
there is little to offer until later on in the disease, underpinned the widespread reluctance of GPs to recognise dementia at an
early stage and were major obstacles to the timely diagnosis of dementia across all eight countries. Dementia care services
varied widely across Europe. Countries with the greatest development of dementia health care services were characterised
by national guidelines, GPs fulfilling a gatekeeper function, multi-disciplinary memory clinics and innovative programmes
that stimulated practice and new services. Dementia-related stigma was perceived as being less prominent in these countries.
Conclusions Overcome of delays in the timely diagnosis of dementia needs more than specialist services. They should
address the processes associated with stigma, age and dementia, especially where these relate to physician practice and
diagnostic disclosure. Stigma is perceived as variable across European States, with a promising finding that its impact is
relatively small in countries with the widest range of dementia care services.
URI
ISSN
0885-6230
DOI
10.1002/gps.1302
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