2026-09-16T00:56:54Zhttps://gredos.usal.es/oai/request

oai:gredos.usal.es:10366/226172025-06-05T12:40:28Zcom_10366_4331com_10366_4200com_10366_3946com_10366_3823col_10366_4332

Rivera Navarro, Jesús Morales González, José Manuel Benito-León, Julián Grupo de Enfermedades Desmielinizantes de Madrid (España) 2009-01-26 2009-10-08T12:03:50Z 2009-10-08T12:03:50Z 2003 Rivera-Navarro, J., Morales González, J. M., Benito-León, J., y GEDMA (2003). Informal caregiving in multiple sclerosis patients : data from the Madrid demyelinating disease group study. "Disability and Rehabilitation, 25 (18), 1057-1064 http://hdl.handle.net/10366/22617 10.1080/0963828031000137766 Se analizan los datos del Grupo de Enfermedades Desmielinizantes de pacientes con esclerosis múltiple Purpose: To describe the profile of Multiple Sclerosis (MS) patient caregivers and assess their caregiving burden.Methods: A total of 91 MS patients, recruited from a Spanish longitudinal survey, and their corresponding caregivers were studied. Caregivers were administered a questionnaire thatcollected social and demographic data, and a generic caregiver burden interview (the Zarit scale). Furthermore, MS patientswere administered a specific health-related quality of life (HRQoL) instrument (the modified Spanish version of the Functional Assessment of Multiple Sclerosis).Results: 24.5% of the sample required caregivers to perform activities of daily life. Caregiver profile was as follows: 67%female; mean age, 51.5+14.1 years; and mean daily time devoted to care, 11.5+8.2 h. Most caregivers had some typeof support, 67% informal and 31.9% formal. The amount of time spent in caring for relatives was the main item determining the burden of MS-patient caregivers. Moreover, MS patient s HRQoL showed a moderate inverse correlation with caregiver burden.Conclusions: In contrast to previous studies, most Spanish MSpatientcaregivers are female, and there is a considerable percentage of parent caregivers. A greater degree of formalsupport and an improvement in MS patients HRQoL may serve to reduce caregiver burden. 8 p. application/pdf Inglés eng Taylor and Francis (Londres, Gran Bretaña) Attribution-NonCommercial-NoDerivs 3.0 Unported https://creativecommons.org/licenses/by-nc-nd/3.0/ info:eu-repo/semantics/embargoedAccess Multiple sclerosis Family Esclerosis múltiple Familia Cuidadores Informal caregiving in multiple sclerosis patients : data from the Madrid demyelinating disease group study info:eu-repo/semantics/article info:eu-repo/semantics/article https://doi.org/10.1080/0963828031000137766