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Titel
What Factors Explain Family Quality of Life in Neurodegenerative Diseases?
Autor(es)
Schlagwort
Neurodegenerative diseases
Barriers
Older people
Predictors
Family quality of life
Services research
Fecha de publicación
2023-04-18
Verlag
Routledge; Taylor & Francis
Citación
González-Ortega, E., Aza, A., Vicario-Molina, I., Orgaz, M.B., Gómez-Vela, M. y Badia, M. (2023). What factors explain Family Quality of Life in Neurodegenerative Diseases? A study in a rural cross-border area of Spain-Portugal. Journal of Gerontological Social Work, 66(7), 960-980. https://doi.org/10.1080/01634372.2023.2202203
Resumen
[EN]Neurodegenerative diseases (NDs) are a major cause of dependency
among elderly and affect the entire family unit. However,
the literature has paid little attention to Family Quality of Life
(FQOL) and focused on the patient and the main caregiver. The
aim was to analyze the FQOL of people with NDs from
a systemic perspective and to identify associated factors.
A sample of 300 family caregivers from the cross-border region
of Spain-Portugal completed the FQOLS – ND, which collected
FQOL global and domain-level scores in terms of attainment
and satisfaction. The highest rates of FQOL were obtained for
the domain Family relations and the lowest for Support from
services. The level of perceived barriers to social-health services
emerged as the strongest predictor of global FQOL in all models.
It is essential to reduce the obstacles to access social-health
services and provide the family with resources according to
their needs, especially in rural areas.
URI
ISSN
1540-4048
DOI
10.1080/01634372.2023.2202203
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